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Old 03-21-2019, 07:02 AM   #1
4labs
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Default Atorvastatin (Lipitor)

My wife who is 61 started this drug because her doctor said her cholesterol was elevated. She is 5-7 140 but exercises and walks a lot with the labs and me.
First signs were joint pain in the knees and arms. Then weight gain but if that wasn't bad enough blood pressure went from 120 to as high as 168. She got to the point that walking was almost too painful for any distance.
I am anti drug so couldn't understand what use this #$%^ is. Her cholesterol may be lower but the side effects aren't worth it.
She stopped using it 7 days ago and feels great and BP went down to 118.Her doctor wanted to put her on BP medicine also.
So beware.

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Old 03-21-2019, 07:07 AM   #2
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Default Re: Atorvastatin (Lipitor)

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Originally Posted by 4labs View Post
My wife who is 61 started this drug because her doctor said her cholesterol was elevated. She is 5-7 140 but exercises and walks a lot with the labs and me.
First signs were joint pain in the knees and arms. Then weight gain but if that wasn't bad enough blood pressure went from 120 to as high as 168. She got to the point that walking was almost too painful for any distance.
I am anti drug so couldn't understand what use this #$%^ is. Her cholesterol may be lower but the side effects aren't worth it.
She stopped using it 7 days ago and feels great and BP went down to 118.Her doctor wanted to put her on BP medicine also.
So beware.
Yea some people have a lot of joint pain with it. I take it and have not had any of that. There are other drugs out there her Doc might be able to change to
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Old 03-21-2019, 08:01 AM   #3
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Default Re: Atorvastatin (Lipitor)

I have joint pain but it's actually less than before I started Lipitor 5 years ago.
My blood pressure is very consistently in the 110/76 +-5 range
I have no side effects

Our blood pressure is a big killer for us older folks and at the very least you should be keeping a daily log

Water retention and weight gain can be from other issues and a complete testing of her labs should be looked at, liver/ kidney function especially.
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Old 03-21-2019, 08:23 AM   #4
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Default Re: Atorvastatin (Lipitor)

Perhaps a drastic diet change would help.

Doctors are very quick to attack symptoms with pharmaceuticals without looking too deeply at causes.

I've seen far too many older people taking a handful of meds every day, each one counteracting some side effect of another one. Each time they go to a specialist, they get a different drug.. the specialists aren't keeping track of what doctor recommended what drug when.. .the pharmacy automatically renews them and people are taking these things for years on end as the side effects take their tolls on their bodies and brains. Lots of depression, anxiety, weird neuropathy issues, shaking etc.

Plus we always find out that things doctors prescribe like candy (like prilosec) with no plan to ween off, have some significant mental health side effects that aren't discovered until they've been consumed by the public for years.

We recently switched to a functional medicine doctor who does a lot of blood work and monitors lifestyle changes and dietary sensitivities, then does follow up bloodwork to see what works and what doesn't. She usually recommends supplements and diet changes prior to recommending pharmaceuticals. Functional medicine sounded kind of woo woo to me, but the fact that half of Americans are taking at least one pharmaceutical pill and 1 in 6 are taking 5 or more pharmaceuticals every day seems even crazier. Couldn't be happier with the health benefits and living a pill-free life. PM me if you want any contact info.
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Old 03-21-2019, 08:39 AM   #5
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Default Re: Atorvastatin (Lipitor)

I have genetic high cholesterol. I am allergic to statins too. I take ezetimibe by itself and it works just fine for me.
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Old 03-21-2019, 08:43 AM   #6
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Default Re: Atorvastatin (Lipitor)

I had borderline high cholesterol but wanted to stay "drug free", esp. since a brother and an uncle had experienced bad reactions to statins. Then I had a near fatal heart attack. I was thus compelled to take Atorvastatin (Lipitor)...I experienced some new and different shoulder pains, but they largely dissipated over a few months. The cardiologists say maybe three percent have adverse reactions.


At last check cholesterol levels were well within the desired range.
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Old 03-21-2019, 08:47 AM   #7
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Default Re: Atorvastatin (Lipitor)

Have her go talk to Doc.

Mom had same reaction. Plus her bp is high without it. Doc took her off it.

Diet, exercise, maybe a pill.
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Old 03-21-2019, 08:48 AM   #8
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Default Re: Atorvastatin (Lipitor)

I have been on Lipitor for 20 years and haven’t had any negative side affects. I tried to lower my cholesterol through diet but was not able to get below 260. The side effects my Dad suffered with heart disease were absolutely horrible. If your Doctor is so quick to prescribe drugs perhaps you should not be seeing him. I see mine because he has earned my respect and trust. I tried for a year before surrendering to a prescription. Just saying.....
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Old 03-21-2019, 11:19 AM   #9
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Default Re: Atorvastatin (Lipitor)

Statins are well know for side effects. Sometimes you can take one statin for years and then have severe side effects. Joint pain in the knees, hands and arms are well know side effects. For me, I took one for years and then started having night time leg cramps (also a well know side effect). Bad enough it was tearing calf muscles and occurring 10-12 times a night. My wife had severe hand and joint pain. My doctor told me he personally was on his fifth statin medicine because he continued to have side effects. If you do some research, statins as a drug class are notorious for side effects. She should talk to her doctor. He could rotate her to a new statin. I use Pravastatin with some success so far.
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Old 03-21-2019, 12:00 PM   #10
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Default Re: Atorvastatin (Lipitor)

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Statins are well know for side effects. Sometimes you can take one statin for years and then have severe side effects. Joint pain in the knees, hands and arms are well know side effects. For me, I took one for years and then started having night time leg cramps (also a well know side effect). Bad enough it was tearing calf muscles and occurring 10-12 times a night. My wife had severe hand and joint pain. My doctor told me he personally was on his fifth statin medicine because he continued to have side effects. If you do some research, statins as a drug class are notorious for side effects. She should talk to her doctor. He could rotate her to a new statin. I use Pravastatin with some success so far.

That's some good information; thanks for the post
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Old 03-21-2019, 02:21 PM   #11
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Default Re: Atorvastatin (Lipitor)

There is also a whole new class of cholesterol drugs that are not statins. They are extremely expensive. But if you actually have side effects from statins, insurance will often pay.

The down side is that it means regular subcutaneous injections you give yourself.

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Old 03-21-2019, 03:22 PM   #12
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Default Re: Atorvastatin (Lipitor)

I see joint pain patients in my practice daily and automatically scan over a meds list for statin use when seeing a new patient because of how common it is for them to be implicated in joint pain. I've seen patients switch to a different statin and do better and I've seen patients give up on meds altogether because of the side effects. Have to weigh the risks and benefits of any medication as they all have the potential for side effects.
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Old 03-21-2019, 03:48 PM   #13
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Default Re: Atorvastatin (Lipitor)

I am on atorvastatin. Guess I better pay much more attention.
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Old 03-21-2019, 04:06 PM   #14
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Well my grandparents lived a pretty solid life of hard work and harder partying. As retired lifer military, They were prescribed so many dam pillis from Madigan army hospital, I can remember thinking how on earth did they even keep track of it all. It finely probably killed grandpa at 92 then grandma past away from all her prescriptions at 96. We even had to take her drivers license when she turned 90 Needlessly to say @ 53, I take what they tell me to take and yes my pill case is mortifying.

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Old 03-22-2019, 06:58 AM   #15
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Default Re: Atorvastatin (Lipitor)

I learned this by living it years ago. Turns out I cannot take any statins, and it wasn't just joint pain, it was systemic and I refused to take them any more. Four cardiac stents later, I relented to try Repatha (evolocumab) at my docs urging and urging. So I have much experience with it over the last year plus. It is some type of antibody as it was explained to me.



IF YOU CONSIDER taking it: DO NOT use either the "Pushtronics" or the "Autoinjector". They have had jillions of failures with both and it was a nightmare to get the replacement for the non-functional device. I had 5 out of 8 Pushtronic units fail to deliver. After just quitting it and doc intervention, I went to the bi-monthly preloaded syringes and no more problems. The other two systems, as far as I am concerned are gadgets.


Now, on to other important facts about it. My hypercholerterolemia values went from 4 times normal to mid normal range with just two doses. I have had no side effects physically or mentally (Many drugs reall F*(&^ up my system and I have to be very careful what I take.


If you cringe at giving yourself a shot, buck up. Angina is far more painful and threatening that a teensy bee sting in the belly fat.



Then there is the insurance issue. I happen to be on BC/BS FEP and have had nothing but problems with the specialty pharmacy in getting the med. I raised heck with BC/BS, my state insurance board, and my doc gave them the riot act too. Last weeks delivery was the first time there wasn't a hitch. Hitches have been "we missed the truck" "it hasn't been approved yet" "We are out of stock on it". It is expensive, when I last looked it was around 2K per shot. (That is like $48,000 a year). I got a special card from Repatha that makes my co-pay only $5.


So those are the facts, there is one other out there, don't know the name, but the cardiovascular docs love this stuff. I hope some of you are helped by this.
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Old 03-22-2019, 09:05 AM   #16
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Default Re: Atorvastatin (Lipitor)

All I ever read is how statins have reduced heart attacks and strokes in a very big way. I would try a few other types of statin before danger sets in.
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Old 03-22-2019, 12:27 PM   #17
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Default Re: Atorvastatin (Lipitor)

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All I ever read is how statins have reduced heart attacks and strokes in a very big way. I would try a few other types of statin before danger sets in.
The only doctor that I trust is my cardiologist
She brought me back from the fringes of death keeping me from having a major stroke or heart attack 5 years ago
Right now she's much more concerned about my liver not functioning properly than she is about heart issues.

I will keep taking the Lipitor until she doesn't think it's beneficial for me
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Old 03-22-2019, 12:34 PM   #18
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The only doctor that I trust is my cardiologist
Didn't you just have surgery?

That must be kinda wild to not trust the person doing the cutting and stitching

What would really suck is to not trust an anesthesiologist
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Old 03-22-2019, 06:54 PM   #19
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Default Re: Atorvastatin (Lipitor)

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Didn't you just have surgery?

That must be kinda wild to not trust the person doing the cutting and stitching

What would really suck is to not trust an anesthesiologist
Yeah, the anesthesiologist is the one who takes you to the brink of death and holds you there while the surgeon does something that can kill you. Then they bring you back. Way underappreciated.

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Old 03-22-2019, 07:44 PM   #20
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Default Re: Atorvastatin (Lipitor)

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Didn't you just have surgery?

That must be kinda wild to not trust the person doing the cutting and stitching

What would really suck is to not trust an anesthesiologist
That is the problem with emergency surgery. Those are all people you don't get to choose. Ya get what ya get. So indeed he has one doctor he trusts.
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Old 03-22-2019, 09:03 PM   #21
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Default Re: Atorvastatin (Lipitor)

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Yeah, the anesthesiologist is the one who takes you to the brink of death and holds you there while the surgeon does something that can kill you. Then they bring you back. Way underappreciated.
January of 2018 almost did me in with the surgery to take out my exploding gall bladder. Had to wait 2 days for a surgical suite. When the time to wake up came, the anesthesiologist was slapping my cheeks (on my face, not my keister) yelling, "Wake up" several times. On a CPAP ( I hate those things!) for two days and then on home oxygen for a month.... Yes, the anesthesiologist did an excellent job!

Suggestion, when on a statin of any kind, would be wise to take CoQ10 to protect the ticker. The CT scan does not lie....

Also on Cozaar and Zocor, automatic for diabetics. Still do not like the Metformin side effects...
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Old 03-23-2019, 05:28 AM   #22
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Default Re: Atorvastatin (Lipitor)

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Originally Posted by fyshndad View Post
The only doctor that I trust is my cardiologist
She brought me back from the fringes of death keeping me from having a major stroke or heart attack 5 years ago
Right now she's much more concerned about my liver not functioning properly than she is about heart issues.

I will keep taking the Lipitor until she doesn't think it's beneficial for me
Interresting, statins are very tough on the liver and they monitor the enzymes closely because of that, she may take you off of it if the rise continues.
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Old 03-23-2019, 10:08 AM   #23
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That is the problem with emergency surgery. Those are all people you don't get to choose. Ya get what ya get. So indeed he has one doctor he trusts.
Unless I'm consulting a Dr on a regular basis I don't consider them to be 'MY' doctor.
They are simply part of the team doing what my doctor says needs to be done


I don't know what is worse getting slapped around to wake me up or waking up before the procedure is done and I've had both happen.

As far as the Lipitor I'm only taking 20mg once a day.
Right now I'm down to taking just a few pills compared to what I used to take

Lipitor
Amiloride 2 tabs per day for helping my liver produce urine and pass toxins
Torsemide, 30mg every morning to force urine/water to pass through my system
Corgard 40mg for blood pressure
Oxycodone, up to 25mg per day as needed for the pain
81mg baby aspirin each morning
Vitamin B Complex 1
Alpha Lipoic Acid OTC for neuropathy

That's about half of the pills I was taking a year ago
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Old 03-23-2019, 12:05 PM   #24
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Default Re: Atorvastatin (Lipitor)

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Originally Posted by fyshndad View Post
Unless I'm consulting a Dr on a regular basis I don't consider them to be 'MY' doctor.

They are simply part of the team doing what my doctor says needs to be done





I don't know what is worse getting slapped around to wake me up or waking up before the procedure is done and I've had both happen.



As far as the Lipitor I'm only taking 20mg once a day.

Right now I'm down to taking just a few pills compared to what I used to take



Lipitor

Amiloride 2 tabs per day for helping my liver produce urine and pass toxins

Torsemide, 30mg every morning to force urine/water to pass through my system

Corgard 40mg for blood pressure

Oxycodone, up to 25mg per day as needed for the pain

81mg baby aspirin each morning

Vitamin B Complex 1

Alpha Lipoic Acid OTC for neuropathy



That's about half of the pills I was taking a year ago

From that list I can tell you aren’t a blood or platelet donor.



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Old 03-23-2019, 01:29 PM   #25
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From that list I can tell you aren’t a blood or platelet donor.



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I doubt if I could donate a hangnail

I'm also not a good candidate for getting a transplant

The surgeon wouldn't even consider removing my gallbladder because of the risks of death on the operating table
That was the worst thing I have ever been through. Two weeks in the hospital and not even a large dose of morphine every couple of hours would lessen the pain. Just pure misery

Now I'm just trying to get a hold of some kind of quality of life so I can enjoy the time I have left

The liver doctor says maybe six months and the other 3 doctor's are saying they don't see any reason why I won't live for another 10 years

I wish I could get all of them to sit down at the same time with me and lay it all out.
Heck I don't think they even talk to each other.
My cardiologist is the only one that actually talks to me instead of just telling me to do this or that
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Old 03-23-2019, 07:54 PM   #26
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My doc prescribed Atorvastatin a bit over a year ago for elevated cholesterol levels. I did some research and didn't like the sound of what I heard so decided not to take it. Kaiser pharmacy called 4 months later to find out why I'd not refilled the 90 day prescription. After hearing my excuse, they explained what the med was designed to do and asked that I closely monitor for side effects. I've been taking it for the last 9 months and had my annual physical last week. Cholesterol levels were cut in half and are now solidly in the acceptable range. No side effects and feeling great. It's working for me.

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Old 03-24-2019, 05:27 AM   #27
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Default Re: Atorvastatin (Lipitor)

I took 3 different statin drugs for about 4 years. Muscle damage in leg got worse, Cholesterol was only down about 20% at best. 200 into the 160 range. Every 6 months it cost Close to $500 (Doctor+labs) to stay on the statin, Plus the drug cost. Last time I had the labs, 2 years after quitting the statin it was in the same basic levels Good C and Bad C. -- Cost vs benefit + side effects = A personal decision to drop the statin.
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Old 03-24-2019, 06:43 AM   #28
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Default Re: Atorvastatin (Lipitor)

After trying to get my C below borderline levels, I opted for a lower dose of Simvistatin 10mg. Has kept everything in the real good zone for a few years now. No side effects at all.
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Old 03-25-2019, 04:20 AM   #29
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Default Re: Atorvastatin (Lipitor)

As can be seen by this thread, statins effect people differently, so try before you knock it, but know there are other meds out there
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Old 03-25-2019, 06:19 AM   #30
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As can be seen by this thread, statins effect people differently, so try before you knock it, but know there are other meds out there
Other meds yes. Completely un-affordable meds in some cases. But yes others are available for some
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Old 03-25-2019, 06:31 AM   #31
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As can be seen by this thread, statins effect people differently, so try before you knock it, but know there are other meds out there
Wise words. Higher dosing has a higher % of side effects as well.
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Old 04-12-2019, 08:20 AM   #32
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Well I briefly joined the Liptor army when a month ago the doc said I should bring down the "C" to reduce any future heart problems. So she put me on 40 mg. I went in this week and she had me drop it because of cramps and irregular urine output, both she said are early signs of adverse reactions that will over time lead up to bigger problems health wise. So with a few days drug free things are coming back to normal. Interesting discussion on here that I shared with her. She said so many people fail to read side effects thinking their body needs to adapt instead of telling their physician about even minor changes after taking a new drug. So when she recalculated my heart risk factor plugging in the latest test results it was 18% without Lipitor 16% with Lipitor, 12% was the best for my age. An interesting evaluation that I have not had a physician do while I was watching the screen.
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Old 04-12-2019, 08:27 AM   #33
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Cramps, you say? Where?
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Old 04-12-2019, 08:39 AM   #34
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Default Re: Atorvastatin (Lipitor)

Oh great, I just started taking it 2 weeks ago, I hate taking any meds but have I hit that zone? will keep my alert brain on.
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Old 04-12-2019, 10:48 AM   #35
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Default Re: Atorvastatin (Lipitor)

Leg cramps, thigh cramps, ( those are a *****), but I think serious hydration can mediate a little of that. I have been taking them for almost 20 years and sometimes the cramps are really bad. But lots of water in the summer really helps. I do know a lot of people who quit taking them because of the side effects.
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Old 04-12-2019, 11:21 AM   #36
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Default Re: Atorvastatin (Lipitor)

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Cramps, you say? Where?
Bill i started getting lower leg and then arm cramps. My wife takes it and has for years but in the summer with a lot of activity she gets these horrible leg craps. She has learned that lots of water and extra potassium would help. She just started with a new product that does help. Her Dr thinks its manageable, my dr does not.

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Old 04-13-2019, 04:47 AM   #37
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Default Re: Atorvastatin (Lipitor)

cramps are probably more due to lack of water and potassium, whereas the Lipitor leaves one aching like they did an obstacle course the day before without any previous training. Not crampy pain at all.
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Old 04-13-2019, 04:50 AM   #38
Bill Rogue V.
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Default Re: Atorvastatin (Lipitor)

Thanks friends. I have been prone to calf cramps all my life, but lately have been having weird shin and foot cramps. But these may be related to the nerve irritation that my upcoming L4-5 fusion is expected to address. Oh it's so darned much fun being an aging baby boomer!

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Old 04-13-2019, 05:47 AM   #39
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Default Re: Atorvastatin (Lipitor)

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Originally Posted by Bill Rogue V. View Post
Thanks friends. I have been prone to calf cramps all my life, but lately have been having weird shin and foot cramps. But these may be related to the nerve irritation that my upcoming L4-5 fusion is expected to address. Oh it's so darned much fun being an aging baby boomer!


As my friend once put it always better at our age to have aches and pains for those who have none are likely in the obituary column.
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Old 04-13-2019, 06:01 AM   #40
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Default Re: Atorvastatin (Lipitor)

I am on atorvastatin also, My doc has me on 80mg daily, I have noticed that about once a week the my ankle hurts like hell for a day or 2 then goes away.
I have had 2 heart attacks in the last 3 years, Doc said my last one was a " widow maker" , So I guess I got lucky and caught it in time.

I have high cholesterol, and my doc thinks I have high blood pressure. I have never had high blood pressure my whole life. They put me in the room and sent in this nurse, (you know the one you can only dream about) and had her take my blood pressure. Of course my blood presure is going to be up. Duh!.

Anyway, now my doc says I have to stay on these drugs for the rest of my life.
I am on atorvastatin, clipidegrel, metoprol, baby asprinand lisiniprel.

I am also trying to quit smoking, so I am on Chantix too.
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Old 04-13-2019, 07:32 AM   #41
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Default Re: Atorvastatin (Lipitor)

I am on the exact same regimen as you are. Have been for the last 20 years. Well I guess the clopedigrel started about 10 years ago, after the dvt and the stroke.
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Old 04-15-2019, 08:06 AM   #42
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Default Re: Atorvastatin (Lipitor)

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My wife who is 61 started this drug because her doctor said her cholesterol was elevated. She is 5-7 140 but exercises and walks a lot with the labs and me.
First signs were joint pain in the knees and arms. Then weight gain but if that wasn't bad enough blood pressure went from 120 to as high as 168. She got to the point that walking was almost too painful for any distance.
I am anti drug so couldn't understand what use this #$%^ is. Her cholesterol may be lower but the side effects aren't worth it.
She stopped using it 7 days ago and feels great and BP went down to 118.Her doctor wanted to put her on BP medicine also.
So beware.
I had the same reaction even worse. Dr switched me to Crestor with same results, then my Dr at the VA suggested Simvastatin, and about 1/3 the dosage and all has been well since (8yrs ago). After a recent cardiac event 20 years post triple bypass, they wanted to go backwards again. I just said NO! So they have upped the Simvastatin, and we will see how that goes, and put me on Eliquis, not too happy about it but will see how the follow ups go. Watch them (Dr's) closely. You do have a say in your health care.
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