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Old 07-16-2019, 11:54 AM   #61
Bill Rogue V.
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Default Re: Pancreatic caner update

Stumpy, good luck with round four. Hope your side-effect symptoms subside quickly. I'll just bet someone here will have an open seat when you are ready to fish.

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Old 07-16-2019, 11:58 AM   #62
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Hang tuff Stump mon.
We all be rooting for ya.
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Old 07-17-2019, 08:12 AM   #63
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Best wishes !!!
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Old 07-18-2019, 09:51 AM   #64
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Here is to better times and better health!!! I am also in the fight for my life as I have stage 4 leukemia but right now I am doing ok. I am on a new drug that seems to be working.
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Old 07-25-2019, 07:22 PM   #65
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Default Re: Pancreatic caner update

I've finished 4 rounds of chemo. Had a CT scan and an appointment with the Doctor. I got to look at the scans.

The cancer seems to have shrunk some, and created some separation between it and the surrounding tissues.

The doctor recommends two more rounds of chemo, then more scans.
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Old 07-26-2019, 03:59 AM   #66
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Stumpy, sounds like progress. Sorry about the additional chemo.
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Old 07-27-2019, 09:09 AM   #67
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Hang in there !! Best wishes to you
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Old 07-28-2019, 04:21 PM   #68
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Oh, the joy of a solid bowel movement!

After 16 days of diarrhea (one of the lovely side effects of chemo), I am now feeling a little better. More energy, but still not sleeping well. But no more waking up as I'm heading for the toilet.
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Old 07-28-2019, 05:20 PM   #69
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We forget about the simple pleasures in life until they are one.A good dump is one of those simple pleasures.
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Old 07-28-2019, 05:55 PM   #70
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Stump,
I hate to sound like a broken record, but I think some tinctures with marijuana and CBD might help with the sleep and appetite. I tried some different mixtures after finding no relief for a cervical (neck) issue that produced a ton of pain and one of the things I noticed, especially with the 1 to 1 ratios was improved sleep and a lot more appetite. I was trying to get rid of pain and they didn't work great for that but if you haven't tried, might be worth a shot. Hope you continue to feel better and get more good news.



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Oh, the joy of a solid bowel movement!

After 16 days of diarrhea (one of the lovely side effects of chemo), I am now feeling a little better. More energy, but still not sleeping well. But no more waking up as I'm heading for the toilet.
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Old 08-02-2019, 06:22 PM   #71
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I had my fifth cycle of chemo today, and am 5 hours into a 46 hour infusion of the nasty one. This is the chemo that makes cold drinks taste like they have ice crystals that dissolve on your tongue. But, the ice crystals aren't really there, it just feels that way.
Still able to eat, just don't have much of an appetite. You would think I would have the munchies with all the cannabis I smoke, but it doesn't seem work out that way.
The full spectrum infused chocolates I make help with the sleep, I also have some RSO that seems to help with the chemo.

Meditation helps, and having adopted an zen outlook on life years ago helps keep things in perspective.
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Old 08-02-2019, 06:35 PM   #72
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Rooting for you. I don't know a lot about marijuana strains but I know that one of the 1 to 1 tinctures I tried completely turned off my "full" feeling. I could eat a full meal and immediately go for ice cream and then go back for more ice cream and feel like I never ate. Now in the long run that just makes a guy fat but when you are in a place where the chemicals make you feel like sh-t, I say go for it.



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I had my fifth cycle of chemo today, and am 5 hours into a 46 hour infusion of the nasty one. This is the chemo that makes cold drinks taste like they have ice crystals that dissolve on your tongue. But, the ice crystals aren't really there, it just feels that way.
Still able to eat, just don't have much of an appetite. You would think I would have the munchies with all the cannabis I smoke, but it doesn't seem work out that way.
The full spectrum infused chocolates I make help with the sleep, I also have some RSO that seems to help with the chemo.

Meditation helps, and having adopted an zen outlook on life years ago helps keep things in perspective.
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Old 08-03-2019, 04:42 AM   #73
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Stumpy, the zen outlook and meditation are real blessings. Keep us in your loop as you work through this chemo series. Know that your Ifish family cares about you.
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Old 08-03-2019, 06:30 PM   #74
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Listening to Bob really helps, too.

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Old 08-04-2019, 05:12 AM   #75
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Default Re: Pancreatic caner update

[QUOTE=stumpyin08;16078373]Listening to Bob really helps, too.


Great attitude, I love music. At least you are able to "treat" the nasty stuff.


I'm a huge fan of your approach, rooting for you all the way.
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Old 08-20-2019, 02:25 PM   #76
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Stumpy, how are things going? Hope in the right direction.
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Old 08-21-2019, 11:21 AM   #77
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I had my 6th cycle of chemo on the 16th. The next one is on the 30th. Dealing with gut issues and dehydration right now. Water doesn't taste good, gatoraid zero is ok, but can't take big drinks, can only sip. I still can't drink cold stuff without it feeling like it changes to crystals and then melts. And it doesn't taste good. I now weigh 14 lb less than I did in high school and 20 lb less than in basic. I've lost most of my muscle mass, legs are skinny, arms are skinny, I'm tired all the time, and I nap a lot.
I really need to go catch a salmon, or just spend a day on the river.
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Old 08-22-2019, 10:14 AM   #78
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Quote:
Originally Posted by stumpyin08 View Post
I had my 6th cycle of chemo on the 16th. The next one is on the 30th. Dealing with gut issues and dehydration right now. Water doesn't taste good, gatoraid zero is ok, but can't take big drinks, can only sip. I still can't drink cold stuff without it feeling like it changes to crystals and then melts. And it doesn't taste good. I now weigh 14 lb less than I did in high school and 20 lb less than in basic. I've lost most of my muscle mass, legs are skinny, arms are skinny, I'm tired all the time, and I nap a lot.
I really need to go catch a salmon, or just spend a day on the river.

Best wishes and keep powering through this!
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Old 08-23-2019, 06:04 PM   #79
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Here's a good article about pancreatic cancer.

https://www.cnn.com/2019/08/23/healt...rnd/index.html
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Old 08-28-2019, 03:17 PM   #80
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Twelve days ago I had breakfast before I went upstairs to the chemo ward.

Today I got up and fried up some hash browns, two eggs, and some bacon.
I feel almost OK today. It is good to have an appetite. I need to gain some weight. Being skinny (I weigh less than I did in high school) feels funny.

I have chemo again on Friday (two days!). Anyone know any good buffets? Time to try to bulk up.
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Old 08-28-2019, 03:47 PM   #81
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Oh, and the end of ten days of diarrhea.



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Old 08-28-2019, 03:52 PM   #82
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Default Re: Pancreatic caner update

This all sounds pretty positive. At least your appetite in the way your body is functioning. Glad to hear you've got some wanting to eat and the other set end of a system is better LOL. I'll keep praying for you brother

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Old 08-29-2019, 08:54 AM   #83
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This is some very good news, Stumpy. Golden Corral is a good chain buffet, but I don't think they have any in the Northwest.
Hope the next round of chemo goes really well.
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Old 08-29-2019, 01:02 PM   #84
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there's hope.

Alex Trebek has finished his chemo and he says "Good to go."

https://www.cnn.com/2019/08/29/media...rdy/index.html
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Old 08-29-2019, 03:04 PM   #85
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there's hope.

Alex Trebek has finished his chemo and he says "Good to go."

https://www.cnn.com/2019/08/29/media...rdy/index.html
Saw that today. YAY.
You guy's are TUFF!
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Old 08-30-2019, 06:53 PM   #86
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It makes me wonder, I can't find any details about his treatment. I wonder if he is in remission and just misspoke. It seems like it was wasn't very long to be treated for a Stage 4 cancer. I wonder if there was surgery involved. Mine was (I hope) Stage 2, and I will have to have surgery after the chemo is finished.
I am doing the 7th cycle now, and have no more chemo (HURRAH!) until after I have a CT scan and see the doctor the end of Sept.
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Old 08-30-2019, 06:59 PM   #87
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It is possible that he didn't announce his condition until he was well into treatment.
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Old 08-30-2019, 10:37 PM   #88
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If Mr. Trebek is totally cured from Stage 4 Pancreatic cancer I want to know HOW! Did he avoid surgery? How did he avoid surgery? What therapy or combo of therapies was used and when? He and his doctors are doing a disservice to everyone by withholding information. If it was patent protected they could talk about it in general terms.

Anything to help me beat this cancer is greatly needed!
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Old 08-31-2019, 08:00 AM   #89
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If Mr. Trebek is totally cured from Stage 4 Pancreatic cancer I want to know HOW! Did he avoid surgery? How did he avoid surgery? What therapy or combo of therapies was used and when? He and his doctors are doing a disservice to everyone by withholding information. If it was patent protected they could talk about it in general terms.

Anything to help me beat this cancer is greatly needed!
Stumpy, as a fellow stage 4 (prostate cancer) I want to caution with over optimism on things like this. I don't mean to give up hope but I proceed with cautious optimism. I am close to 1.5 years since diagnosis. I have had times that I thought I wouldn't make it and times like now where I am able to go ocean salmon fishing. Being off chemo will make you feel better. I wish you the best with your treatments. Next Wednesday I have my 14th chemo infusion in less than 12 months. It is a club no one wants to join but here we are. Enjoy friends and family and hopefully you can get some time fishing....it is good for you! https://www.healthnewsreview.org/201...y-health-news/
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Old 08-31-2019, 12:50 PM   #90
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Thanks, 8Knots, that article highlights some of the things I was complaining about.

When I was in for chemo a month and a half ago, I met a guy who was there for experimental T-csll therapy for his prostate cancer. He seemed to be doing fairly well.

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Old 09-03-2019, 03:48 PM   #91
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Due to the chemo, I will be unable to attend the Bob Seger concert at the Tacoma Dome on Saturday, Sept. 21st. I have one ticket for sale in the classifieds.
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Old 09-03-2019, 04:02 PM   #92
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Quote:
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If Mr. Trebek is totally cured from Stage 4 Pancreatic cancer I want to know HOW! Did he avoid surgery? How did he avoid surgery? What therapy or combo of therapies was used and when? He and his doctors are doing a disservice to everyone by withholding information. If it was patent protected they could talk about it in general terms.

Anything to help me beat this cancer is greatly needed!
Same thing with Ruth Bader-Ginsburg? Might be a genetic thing?

Steve Jobs had more money than God, but it didn't do him any good. I wish you the best Stumpy. Rough road ahead, but I'm pulling for you!
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Old 09-03-2019, 08:51 PM   #93
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Stumpy is the plan to do a whipple after chemo?
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Old 09-04-2019, 08:30 AM   #94
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Hi, Yes, The doctors plan on removing and rearranging my guts.
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Old 09-07-2019, 04:56 AM   #95
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Wow. Had to look that up.
https://www.mayoclinic.org/tests-pro...t/pac-20385054
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Old 09-08-2019, 06:49 AM   #96
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Pulling for you! Thanks for posting on here, keep your head up and one foot in front of the other.


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Old 09-12-2019, 04:10 PM   #97
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Next chemo is tomorrow (Fri the 13th!). This is the eighth chemo cycle, four months of chemo now.

I'm having steak and roasted potatoes for dinner tonight, first steak in more than three months. Apple pie with ice cream for dessert. Life is still good.
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Old 09-12-2019, 04:28 PM   #98
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Friday the 13ths have always been good for me. With a full moon backing it up, it will be good luck for you too.
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Old 09-13-2019, 05:06 PM   #99
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I got a reprieve! No chemo today!

My platelets and red blood cells were both below their respective thresholds. The nurses gave me some magnesium and a unit of red blood cells to boost my system.

That means I get a week to relax, eat, and recuperate.

My next chemo will be on the 20th, and CT scan and Dr appt on Oct 3rd.

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Old 09-13-2019, 05:52 PM   #100
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Since I have a week off from chemo, anyone have an open seat?

It would be good just to spend a day on the water, catching would be a bonus.
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Old 09-19-2019, 02:08 PM   #101
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Well, my one week vacation is over, back to chemo tomorrow. Grilling a steak tonight and maybe have a beer. Tennessee and Jacksonville are playing tonight, should be a good game.
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Old 09-19-2019, 02:29 PM   #102
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Stumpy, you're taking good revenge: steak, beer and football.

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Old 09-19-2019, 04:34 PM   #103
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I forgot to mention that this will be my 8th chemo cycle, then CT scans on Oct. 3rd.
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Old 10-04-2019, 05:45 PM   #104
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Hi all, I had a CT scan and Dr appt on Thursday. The CT scan showed that the cancer is still about the same size as in the last scan two months ago. The cancer is about 75% involved in the pancreas and hasn't gotten bigger. However, the scan showed two spots on the liver that don't look like liver.

My Dr was waiting to hear from the surgical oncologist about what she thought we should do, but I'm not real fond of the surgery idea.


However, the scan also showed that the four spots they saw in my lungs are gone. The Dr.'s don't know if the spots were cancerous and responded to the chemo, or maybe were environmental from working with weird chemicals for 10+ years and just needed to be flushed out.

The decision ended up being to do 4 more cycles of chemo, followed by another CT scan and DR consult.

Today (Friday) was another (first of four) cycle of chemo (NUMBER 9!), and the nurses promised that the new diarrhea meds were in the mail.
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Old 10-05-2019, 04:21 AM   #105
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Sorry for the mixed news, Stumpy. Hope the next scan is much, much more encouraging.
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Old 10-07-2019, 10:00 AM   #106
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Hang in there, brother!
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Old 10-11-2019, 03:05 PM   #107
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Hi All, I think that my body is getting used to this crap. I'm feeling fairly normal (what's normal anymore?) today, guts are OK, and am still sleeping a lot.

The 4th was my ninth cycle of chemo, with three more to go (six weeks), before the next CT scan and Dr appt.

Thinking about what to eat this weekend, I need to get propane to grill some steaks and sausages (football food!), maybe start some soup stock and make soup, maybe dust off the bread machine and make cheese bread to go with the soup. Or maybe pizza.

At least my appetite is coming back, I've got some weight to gain back.
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Old 10-11-2019, 03:16 PM   #108
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Eat up man! Enjoy it. Keeping u in my prayers amigo.

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Old 10-18-2019, 03:13 PM   #109
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Hi All, Went to go do chemo today and my body wasn't ready. The platelets and red blood cells were both too low, so now have a week off to eat, drink, and sleep.

Anybody fishing Tillamook and has an open seat?
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Old 10-22-2019, 11:14 AM   #110
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These days off from chemo are nice. My gut has calmed down, had steak for dinner, and a chocolate ice cream bar for dessert. Chemo again on Friday.
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Old 10-22-2019, 11:25 AM   #111
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These days off from chemo are nice. My gut has calmed down, had steak for dinner, and a chocolate ice cream bar for dessert. Chemo again on Friday.
Glad you feel like eating. Hope Friday goes good and easy for ya.
Surprised you feel like eating steaks.
My daughter couldn't hardly stand it after her chemo treatments.
She still say's steak tastes weird after all these years. She went through it at 16 y/o. She'll be 37 next week.
Chin up brutha man. We all be pulling for ya.
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Old 10-22-2019, 03:53 PM   #112
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Location: Troutdale
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Default Re: Pancreatic caner update

Im praying for ya
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Old 10-22-2019, 05:28 PM   #113
wildwood
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Default Re: Pancreatic caner update

Quote:
Originally Posted by stumpyin08 View Post
These days off from chemo are nice. My gut has calmed down, had steak for dinner, and a chocolate ice cream bar for dessert. Chemo again on Friday.
Keep up the good fight buddy.
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