Dear Community,
I'm going to be on the board as little as possible for a while.
Going to leave the mods a note to try and take care of it.
I'm going to work on ifish.net home page and take care of my clients.
I'm going to play the piano again.
I'm looking forward to listening to the river, reading a good book, visiting with my kids, and laughing with my family. Maybe even hook a nook.
September 11th has had a big affect on me too.
The stress of this board is affecting my family life and I have some medical testing to do.
Please, watch ER tomorrow night!
It's about what Andrew and I have, and it's important to me that you watch it!
Interesting, I got this in the mail from the guy who is playing the roles on ER's Mother.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR> Hello everyone,
My name is Ruth Norton and my son Lee is the person that will be portraying the Marfan patient on ER Thursday night.
Some have voiced a concern about the segment showing a Marfan patient who dies, rather than living. That was my thought at first as well. We all want to live a long and wonderful life! But then some things came to mind that made me realize that this portrayal is best. One, is that this is reality for many people. Misdiagnosis is common for Marfan's. Another, is that if this patient did just fine, people who watch the show wouldn't take it seriously. We need people to take it seriously so that they will act, get information and get the needed treatment.
As many of you know, I have lost my 15 year old son, my sister, my brother, and my father to Marfan's. When my son Robert went into the emergency room they were not able to diagnose the problem and we lost precious time. The same thing happened to my brother, even though he told them he had Marfan's.
My point is, with more public awareness about Marfan's, more people will be interested in learning about it, it will increase the chances of a correct diagnosis being made, and people will live.
Lee, who is affected with Marfan's as well, has handled this ER opportunity with what I would call a humble reverence, and a desire to do whatever he can to help others learn. He hasn't talked about the filming of the segment to us or his friends. Maybe it hit too close to home, I don't know. But I'm proud of him and grateful that he could do this.
I think when I watch ER many memories will probably flood to the surface. Not to mention that it will be tough watching Lee "die" even if it is acting. But hopefully, for many other people, this segment will prevent them from ever having the same tough memories.
Let's all hope that ER does a good job with this, and that the NMF continues to find many other opportunities to promote public awareness. I'm certainly grateful for all that they do. Because of the research that has been done the prognosis is looking better every day for all of us.
Cross your fingers that ER goes well!
Ruth
<HR></BLOCKQUOTE>
I just need to bow out politely for a bit. Life can be so short.
Thanks for understanding, and I'll be here off and on to give away products, etc.
If you need to contact me, do so by e mail with any questions about loggin on, etc, or contact one of the mods.
Carry on,
Jen
salmon@seasurf.net
Jennie needs a break too.
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