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Old 07-30-2001, 07:37 AM   #1
Jennie@ifish
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Default Iphoto ifish, ready, set.....

I have a little grab bag of goodies here, and it contains:
One point and click 35mm camera to store in your tackle box
One Eagle Claw fly reel
One 101 peice fisherman's accessory kit

I like to help get the word out about Marfan Syndrome for people who don't know about it.
I know this is a fishing web site, but knowing about Marfan can save lives. This is important to me!
According to
This article, What is Marfan syndrome?
It is a "heritable....? (finish the sentence).
Marfan syndrome is characterized by tall, lanky stature, and long fingers and toes. If you know of anyone that looks like this, has poor eyesight and a deformation of the chest, tell them to see a doctor!
First person back with the correct answer wins the grab bag.
Was this confusing? I hope not! I am just looking for the rest of the sentence that starts explaining marfan... "A heritable....?"
Jen
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Old 07-30-2001, 07:39 AM   #2
bait boy
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Default Re: Iphoto ifish, ready, set.....

a "heritable disorder of the connective tissue that affects many organ systems, including the skeleton, lungs, eyes, heart and blood vessels,"
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Old 07-30-2001, 07:41 AM   #3
local_hooker
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Default Re: Iphoto ifish, ready, set.....

"heritable disorder of the connective tissue that affects many organ systems, including the skeleton, lungs, eyes, heart and blood vessels," according to the National Marfan Foundation.
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Old 07-30-2001, 07:43 AM   #4
Jennie@ifish
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Default Re: Iphoto ifish, ready, set.....

The 'bait boy' has got it!
Wait a minute! You guys didn't get a chance to read it!
Now, everyone go to and think.... Do I know of anyone like this????
And get them to the doc! I probably wouldn't be around today, if I wasn't aware of my condition.

Sorry, I've got access to all these people and the marfan folks appreciate me doing this!
Send me your address, bait boy, k?
Jen
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Old 07-30-2001, 07:46 AM   #5
bait boy
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Default Re: Iphoto ifish, ready, set.....

You should have it I changed my moniker from Rickh75 if not i'll send it again
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Old 07-30-2001, 07:48 AM   #6
Jennie@ifish
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Default Re: Iphoto ifish, ready, set.....

ISH!
The darkest side of Marfan....
Can you tell I'm worried about my next echocardiagram? I didn't write this!
Jen
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Old 07-30-2001, 07:49 AM   #7
Jennie@ifish
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Default Re: Iphoto ifish, ready, set.....

I probably do, but where? Send it, k?
[img]images/icons/smile.gif[/img]
Jen
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Old 07-30-2001, 07:50 AM   #8
bait boy
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Default Re: Iphoto ifish, ready, set.....

Hey fishing keeps you healthy and well so keep your rod tip up and your line in the water....
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Old 07-30-2001, 11:32 PM   #9
will_e_fish
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Default Re: Iphoto ifish, ready, set.....

Jennie- thanks for the great fishing site and all that you do for the fishing people of the NW ! Knowledge and fun informative articles are what keep us all connected,keep us comming back. It is not always fishing but the knowledge given in a helpful concerned way. Marfans as well as diabetes has taken a toll in my family. Getting the word out about these afflictions is only part of it, a person has to listen it and willing to accept the truth. Denial is not a river in Africa. People closed to listening or accepting new ideas often live short/shallow lives. If you know someone with symptoms urge them to see a good Dr. or get second opinions.
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