Jennie@ifish
04-25-2003, 05:23 PM
Please keep Andrew in your prayers.
We usually go once a year to check our aortic root sizes, with Marfan Syndrome to see if they have stretched out... (Which can be the precursor to an aortic dissection).
This time, Andrew's has grown enough to warrant being checked in six months, instead of a year.
Plus, for sure, now, no contact sports of any kind, no running, no lifting over 15 pounds.
He is very tall, and loves to play basketball, which is out... Of course, I was told not to play sturgeon, or other heavy fish... and... uh... well? :whazzup: oops! I do. I guess it's his decision. He knows what the consequences can be.
I hate that. :depressed:
Mine grew too. Up from 42, to 45... When I get to 50, time to have surgery with a pig valve or St. Judes. :depressed: Of course, then again, he says people with marfan can dissect at 30... So there is no tried and true rules. OH, that's helpful! argh.
Mine has been growing 2 or so, every year since about10 years ago. It bothers me more and more as I get older... tick... tick.... tick...
Andrew's was steady until this year. His is 43 now... That's big for a 15 year old. Normal adult is 38ish.
So, please keep Andrew in your prayers. It's pretty heavy stuff for us.
It's pretty weird to have to remember his social security number, birth date..... and aortic root measurement. :depressed:
I'm sure we'll be OK. Right? :smile:
Thanks,
Jen
We usually go once a year to check our aortic root sizes, with Marfan Syndrome to see if they have stretched out... (Which can be the precursor to an aortic dissection).
This time, Andrew's has grown enough to warrant being checked in six months, instead of a year.
Plus, for sure, now, no contact sports of any kind, no running, no lifting over 15 pounds.
He is very tall, and loves to play basketball, which is out... Of course, I was told not to play sturgeon, or other heavy fish... and... uh... well? :whazzup: oops! I do. I guess it's his decision. He knows what the consequences can be.
I hate that. :depressed:
Mine grew too. Up from 42, to 45... When I get to 50, time to have surgery with a pig valve or St. Judes. :depressed: Of course, then again, he says people with marfan can dissect at 30... So there is no tried and true rules. OH, that's helpful! argh.
Mine has been growing 2 or so, every year since about10 years ago. It bothers me more and more as I get older... tick... tick.... tick...
Andrew's was steady until this year. His is 43 now... That's big for a 15 year old. Normal adult is 38ish.
So, please keep Andrew in your prayers. It's pretty heavy stuff for us.
It's pretty weird to have to remember his social security number, birth date..... and aortic root measurement. :depressed:
I'm sure we'll be OK. Right? :smile:
Thanks,
Jen